My son age 8 had high rate personal care for 3 yrs. I thought the renewal\nwould renew. After several months I recieved a letter from Income support\ninforming me that I no longer got disability premiums for my son. So I\ncalled DLA who told me they couldn't talk about the decision over the phone\nuntil I had recieved the decision letter. They told me they had sent it in\nFebruary, but I had not recieved it.They gave me some "lost in the post\nlecture", and agreed to send me another letter. I only recieved the decision\nletter 1 month ago! They stopped all Petes DLA, my carers allowance and\nstopped £70 a week from my income support! and also want me to work, I have\nanother child on high rate personal care and 3 able children.\nI have sent of the appeal for to ask for a review. The reason pete got\nturned down is this..\n\nHe has been diagnosed with autism, and ADHD, and ODD.The clinical social\nworker sees him, as has the SHO for the child pschologist. Problem is the\ndiagnosis can't be offical till the main man sees him on a one off, after he\nlooks at the info collected by the other two during appointments. He is\nseeing pete in July as his waiting list is huge.\nMy son soils himself and is 8 yrs old. At home he is destructive and is a\ndanger to himself and others. At school he was withdrawn, but had outbursts.\nHe spent many months soiling and sitting in it all day in class, and when I\nconfronted the school they said they had no idea. We got Pete to tell his\nteacher, but then I ended up going into school to clean him up several times\na day.\nThe DLA forms went to the school, (even though I asked them to send them to\nchild and family), and the school refused to fill them out saying they\ncouldn't say anything till the offical diagnosis came through. We agreed\nwith the school for them to post them to child and family as they know\neverything about pete, but they sent them back to DLA as good as blank.\nI am appealing, and sent letters from doctors, social workers and family\nsupport workers, and photocopied them.\nI called DLA today and asked if I could have an explanation of the decision,\nbut they said they couldn't. The very nice lady (for a change) told me that\nthe letter in February had never been sent! She said I am on the record as\ntelling you this so use it in your appeal.\nSeveral people at DLA told me they had sent it!\n\nSo they stopped all our benefits without me knowing why!\nDIAL (who are helping me appeal) say that they can get all the money\nre-instated (until a decision is made on the revision) based on this\ninformation, as they have compromised my rights.\n\nThanks for getting this far! So what do you think?\n\nAndrea.